Living with smell loss, whether from illness, injury, or an unknown cause, can feel incredibly isolating. The experience is so often misunderstood by those around us, and it can be hard to know where to turn for support, information, or simply someone who gets it.

That’s why community matters so much. Connecting with others who truly understand what you’re going through can make a real difference, not just emotionally, but practically. Our Facebook groups are home to thousands of people navigating the same challenges, sharing experiences, asking questions, and cheering each other on.

Whether you’re newly diagnosed, months into your journey, or supporting someone you love, there’s a place for you here.

Find Your Group:

Anosmia Support
Our welcoming general support group for anyone living with smell loss. A safe space to ask questions, share your story, and find community.

CKOS Covid-19 & Post-Viral Smell and Taste Loss
Dedicated support for those experiencing smell and taste loss following Covid-19 or other viral illness. Connect with others on the same post-viral journey.

CKOS Parosmia and Phantosmia Support
Specifically for those experiencing distorted or phantom smells. A specialised space where your symptoms are understood and taken seriously.

Stay Connected
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